Tiring days

Another long gap between posts, the days are so busy now and by evening I'm usually falling asleep. I am really enjoying the work though, every day is different and we are almost due our first commission once the cheque clears.

So far I haven't had a virus this winter, and fingers crossed I don't as I can't imagine how I'd cope with working as well. My memory has been a lot better than I expected, but now our case numbers are growing its not as easy.

Tired but happy

I am coping with working better than I expected, I do find it mentally tiring but try not to stay up too late. I keep doing a few household jobs first thing and sometimes in my lunch break. Weekends are the time when I do most housework, but also try to have some time to relax too.

I have had a lot of pain in my shoulder, which some nights as made it hard to sleep. I have used the cream I bought in New York which helps, as does the heat pad. Luckily my chair is comfortable when sitting at my desk, but do have to get up and move around to stop me siezing up.

Challenges

I am so glad despite the huge stress of setting up our new business it hasn't caused a flare, but I always believed the biggest cause is a virus. I am really hoping to escape most of them this winter, but as my daughter is now working in a school I guess its too much to hope.

My memory is still a problem at times, but I find getting stressed makes it worse so just take a day at a time. I am grateful that my son decided to join the business though, as I could never have done so much work in such a short period of time.

The work is mentally tiring, but keeping up with the housework is physically tiring, but we are trying to keep on top of things. One positive thing about been so busy is I'm sleeping better, still feel tired some mornings but its better than before. At least no two days are the same, nor two families which makes this work interesting and rewarding.

Christmas is fast approaching, so decided to get things done as soon we can, rather than leaving things till the last minute. I am not going to worry about what needs doing, as it always gets done and Christmas is over before you know it!

Busy few months

I can't believe its been so long since I last updated my blog, but the good news is our new business is up and running. We have been open nearly a month, and I can't believe how busy we've been. We moved into our lovely new office two weeks ago, which makes life so much easier.

I have felt really good until recently, but I've had a virus since last week, which has caused a flare up of my condition. Fingers crossed it doesn't last too long, as its hard to concentrate with a splitting headache. I did have my first ever flu jab, as I decided I can't afford to be ill with flu now I'm so busy.

I don't feel like doing much work on the computer after using it all day at work, so not done any of my own family tree research for months.

New baby

We now have a new baby in the family, our nephew and his girlfriend had a lovely baby girl last Friday. We have only seen a photo so far, but hope to visit as soon as they are home.

I went to a family birthday party at the weekend, which was lovely except I struggled to cope with the loud music. I should have taken some ear plugs, but never thought, but the next day I ended up with a migraine.

The house is slowly been de-cluttered and tidied, so hopefully it will be easier for me to look after when my daughter and son start uni.

Tomorrow I have a meeting at the bank, as I need to open a business account, just hope I don't forget anything. My daughter is taking me so hopefully she will help me fill in the forms etc.

My pain has continued to be bearable so have been out more recently, not sure what will happen when the weather turns cold though.

Busy week

I have been really busy this week, but the pain has been managable, most of the time. Yesterday I had an increase in overall pain, but although today I had a sore throat its not got any worse. (Fingers crossed its not the start of a flare) I have been out more too, not far or for long but at least I felt well enough to go.

I haven't been able to get to sleep though, my mind has been too full of house viewings. We lost the one we had put an offer in, so started looking at others. Some are in need of a lot of work, and it made me wish my Dad was still here to help and advise us. I also know I wouldn't be able to help do the work like I would have in the past.

I am still working on my new business, mainly researching new cases at the moment. I find the work addictive so its hard to stop and do other things, like housework but then get over tired.

Looking forward to a relaxing weekend, just hope we get some nice weather before summer is over.

Party time

We had a party for my sister-in-laws 50th birthday on Saturday, which was a great success. It took a lot of planning and organisation which luckily my daughter did most of it. I couldn't have dealt with the stress of it all, but enjoyed just helping with no pressure.

It was lovely catching up with some family we don't see very often, and so good to see the birthday girl relaxed and happy after a stressful few months.

The day was tiring, especially as we were stood most of the afternoon, so it didn't help my muscles. I had a lot of cramp in the night, which make my calf muscle so painful, it was really sore all day on Sunday.

I had hoped today it would be easier today, but it stopped me sleeping last night. I decided the ironing will have to wait till its easier, as standing on it just aggrivates it even more.

My Birthday treats

I have had a wonderful day thanks to my lovely family, although we decided against going to Derbyshire. I knew I wouldn't enjoy it while not feeling very good, but still had a special day. I have had some really pretty cards and gifts, but the most special gift was spending time with my two children. (Last year Laura was in America working at a summer camp) Tom my son went to buy some bits for tea and came home with a huge bouquet of flowers from him & Laura. They had bought me a new vase among other things, so they are looking lovely on my windowsil, then this afternoon he baked me a birthday cake.

I had a visit from my sister -in-law and my nephew James, but no sign of an imminent arrival of his new baby! My little nephew rang this morning, as well as my sister, Mum and Mother in law, and my best friend rang me from Florida which was nice. I've had messages, text message from family and friends, which make you feel loved and remembered.

My husband came home from work with another wonderful bouquet of flowers, its a good job we have plenty of vases. Tea is been prepared as I type, just hope we have room for some birthday cake for desset though.

Birthday plans

Things have caught up with me today, after doing too much on Sunday, then catching up on some ironing yesterday. We were going out early, but I was so tired it was mid morning by the time we left. We went to a factory shop in Doncaster at a favourite bakery of ours. I enjoyed the drive in our new car, and we got some nice things from the bakery, then we came back via a scenic route, as Tom & Laura haven't been that way before.

The plan tomorrow is a run out into Derbyshire, as its my birthday, just hope I feel better. I want to go to a churchyard where some ancestors are buried, but it will depend on the weather.

I am hoping to become a great aunt tomorrow too, I've got my fingers crossed my nephew and his girlfriends baby arrives. Seems only two minutes since my nephew was born, and now he is having one of his own.

Back again

I can't believe how long its been since my last post, due to a mixture of reasons. Firstly its been so hot at times, so I had to sit outside in the shade where it was a lot cooler than indoors. I couldn't concentrate either, and the humid weather made me feel really tired.

Then we have been really busy, and I have finally decided to go into business with my brother-in-law. So I've had lots to think about and decisions to make which has been keeping me awake at night. But after a successful meeting on Saturday, we are now ready to get things moving. I will be working from home, so can do things at my own pace, which is important when suffering from Fibromyalgia.

We are also helping our son, who is trying to buy a house as an investment, which is another stressful experience. We are just waiting to see if we have our offer accepted, then can start planning the improvements it needs.

I have over done things today, as we are trying to de-clutter and once its done it will make life easier. But sorting things and going up and down stairs hasn't helped my muscles. So just hope I can move tomorrow, but think I will have to take it easy.

Trip out

I felt well enough to go out this morning with my daughter to buy uni supplies for Laura and I got some folders for my new business. I was pleased that now I've stopped drinking the caffiene tea, I didn't get the dreadful headache like before.

I sat outside when we got home, as it was sunny for a change, but not overly warm. Laura baked us a fruit crumble, with fruit from their allotment for lunch. Later I did some of my jigsaw, but my back muscle were so painful and it didn't ease till this evening.

Just hoping I can sleep tonight, as it seems to be alternative nights at the moment.

Back at last

More frustrating days without the internet, but fingers crossed the problem is now sorted!

I haven't been able to sleep the last few nights, had a lot of pain in my hip and leg which made it difficult to lay on that side. Last night my skin felt like it was on fire, which made it difficult to get to sleep too.

I felt better today, even did some ironing and hung some washing out. I had had more muscle pain once I'd finished, but it needed doing. Then my son took me for a lovely run in our new car, which was a pleasant change.

Internet problems

I have had no internet for the last two days, and have missed it terribly, as its my distraction for coping with this condition. I didn't felt very well yesterday, woke up with overall pain so had to rest. Luckily today I felt so much better, which was a relief as a flare usually lasts a lot longer.

We went to my sisters this afternoon, to celebrate my Mum & nephews birthdays which fall on the same day. I was happy as I did well answering some trivial pursuit questions, which recently has been difficult with my poor memory.

My legs have been really painful, especially the tendons behind my knees. But have increased my Amitriptyline again, so now take 50mg a night. Hopefully it will help with the shooting pains, which I still keep getting.

Cooler temperatures

I slept better last night, and have had a good day now the weather is better. I did hear we will have more rain the second half of July, but better that than high humidity.

I did some research today, luckily my brain was working reasonably well which helps. I do have to make notes to help remember things, and at times my eye sight is blurred which is frustrating. But won't let it stop me doing something I enjoy, and I find it a good distraction for the pain.

I did have some strong painful spasms in my back muscles, and more shooting pains in my feet. I've not been out this week so far, so hopefully will feel well enough to go to my sisters this Sunday.

Decision time

Couldn't get to sleep last night at all, despite feeling really tired, so slept a bit later this morning. I over did things though, as I tried doing some light housework, which completely drained me of energy. My ankle continues to be a nuisance, it just locks up without warning and is very painful.

I have had a few more quite strong electric shock pains too, which had eased recently since I increased my Amitriptyline.

I have been doing some thinking recently as I have a big decison to make and not sure yet what to do. I enjoy doing Genealogical research, so I'm considering doing it as a job, only part time working from home. I don't want my condition to prevent me doing something I enjoy, but also know that stress makes things worse. But think it might be better to try it, and if it is too much stop, than always wonder how I might have coped. So on Sunday I am meeting up with my business partner to discuss our options and come to a decision on what we will do.

Improvement

I didn't feel too bad this morning despite having to get up earlier than normal. But the pain in my ankle is back, and the pain in my left hip has been worse today. 

I have had a better appetite recently, but trying to eat healthly, as last week when everyone was off we had some treats. 

I have had more pins and needles in my hands which is aggravated by the carpal tunnel. But the splints the hospital gave me are very uncomfortable to wear. You can't use your hands either, so I have to put up with it I suppose, as I don't want surgery.

But I think the flare that I had last week has improved, as the pain levels have subsided back to a normal level.

De-caf success

I was really tired this morning, so took a while to get up and feel awake. I decided to stop having a normal cup of tea first thing as it tastes too strong now. So now have a smaller one mid morning which seems to work, and from having twelve normal teabags to just one, with no problems I'm happy. It's a benefit the de-caf teabags taste better as I don't like strong tea.

I have had some pain as usual but nothing too hard to cope with, except my ankle was a bit sore if I walked up or downstairs. It was warm in the sun, but not humid today so didn't end up with an awful headache.

My joints are stiff this evening and all my muscles feel sore which is normal but you do wish it would be nice to be pain free for a day.

Tomorrow we have to take our dog to his hydrotherapy session, so its an early start which isn't ideal for me. But I'll take my book and stop in the car, as the place has a very steep garden which isn't ideal for me.

Helping

I decided to help this morning by moving a few bits of wood to the skip, so now have some sore scratches on my hands even though I wore gloves.

The warm muggy weather today hasn't helped my headache, wish we could get a bit of rain to clear the air and cool things down a bit.

My doctor recently suggested I tried doing some gentle gardening to help with stress. But even a bit of weeding increased my pain too much to be relaxing! My back muscles feel like they are on fire, and the burning sensation is back in my thighs today.

Pain free feet!

I couldn't get to sleep last night at all, my mind just wouldn't switch off, so I even thought about getting up again. I've had a much better day, no pain in my feet for the first time this week, which was a big relief. I did have more pain in my back muscles, especially when standing but felt better in general.

The new drive is finished, despite me been no help and looks wonderful after a week of hard work. They other area round the flower beds is still to finish, but it was great to see the new car driving on for the first time.

Raining

I've had a better day with more managable pain levels, although I have had a bad headache. (Probably due to the weather) The work on the drive is progressing really well, but the weather has been awful with frequent heavy showers. So I've not been sat out at all today, to be honest its not felt that warm either.

We watched the last space shuttle launch on TV this afternoon, and was relieved it went up safely. We had briefly considered going over to Florida to watch it live, as the last one we saw was amazing. But the flight prices were riddiculous high, and feeling like I have this week I doubt I'd have enjoyed it very much.

I have had a full week of just one drink of tea with caffiene in first thing in a morning and no severe headaches thank goodness. So next week I might try alternate days and see how it goes. so time will tell.

Flare continues

Wednesday 6th July
Didn't feel up to writing my blog last night, I was too tired to think straight. In the afternoon I had a dreadful headache, due to the hamering outside. So ended up sitting outside until it rained, then sat in the garage. I did do a bit of ironing in the morning, but by lunchtime my feet felt so painful I couldn't walk. I also had pain in my ankle and hip again, so put more pain gel on to see if it would help. I think it did a bit, but mainly resting with it elevated helped the most.

Thursday 7th July
I slept better as it was a bit cooler, but didn't want to get up this morning as I had pain everywhere. But eventually got up and managed to do my hair and then do a bit of tidying. My feet were a lot less painful, except my ankle which locked up so couldn't put any weight on it again! I've noticed a lot of numbness in my left side again, funny how it just comes and goes.

Just hope this flare doesn't last for much longer, not been out for so long I've forgot when or where it was!

Hard to walk

I couldn't get to sleep last night due to the pain and been too hot, so still felt tired this morning. My ankle was a bit easier until I started walking around on it, so sat out for a while getting some vitamin D to rest it. By lunchtime my painful feet were back, so now sat with them up, as it feels like I'm walking on broken glass if I put any weight on them.

Work is progressing on the drive, we have had so many deliveries its hard to keep track. Luckily the nice man form Virgin media came earlier than expected to repair the cable, so we now have a working phone and the internet is restored. Been house bound so much, it is my link to the outside world, and I'm lost without it.

Painful feet

Monday 4th July

Work began on our new drive and front garden today, I found it very frustrating not to be able to help. Well except make drinks etc, but despite hardly doing anything I was in so much pain by teatime. My feet felt like all the bones were crushed, one ankle felt badly sprained and my arm muscles felt like I'd been digging soil!

We went to be just before ten, as they were all shattered due to the amount of work they'd done, I was just shattered due to having this awful condition.

I couldn't post this till today, due to the cutting through the phone/internet cable that wasn't buried very deep!

Stiff joints

I found it easier to sleep last night now the buzzing is back to a normal level, but it was a bit on the warm side. We need the windows open, but our dog is annoying as he barks at the slightest noise!

I have really sore feet and tense muscles, but haven't been stood much today. My daughter just had to help me lift up my leg, as my hip was too stiff to lift it on the pouffe.

I am really tired tonight, and have to be up early tomorrow so hope I get a good night's sleep.

Lovely drive

We did go for a lovely drive yesterday evening, we called to show our new car to my sister and family. My 9 year old nephew had two medals to show me, that he'd won in a ski-ing competition for school.

We drove round some country lanes and through some villages, where some of Paul's ancestors were from. I normally drag him round the church graveyards, but just enjoyed the drive last night.

Today I did some ironing, but my back muscles and hips made me stop after a while. So I decided to go for a look round the warehouse with Paul & Laura for a bit. I enjoyed looking round, but was relieved the queues at the checkout weren't long as I can't stand for long.

My back and hips were aching when we got back, but at least I didn't have another headache. The buzzing in my ears has been more bearable too, so won't be able to visit any countries that I could get malaria!

Quinine

Went to bed last night and the buzzing in my ears was horrendous, completely unbearable so made the decision to stop the Quinine. It took ages to get to sleep, with pain my muscles as well. I really can't believe how bad a reaction I have to only two tablets!

This morning I had a dreadful headache, it felt like my head was been crushed, I also had a lot of pain in the back of my neck. It was the first morning for two weeks I hadn't had a normal mug of tea, so not sure it it was a coinsidence or not.  So I've decided to carry on just having the one normal mug of tea for a while longer, then slowly reduce it. Surprisingly I actually prefer the de-caf ones as its not as strong, so its not hard to switch.

I haven't felt brilliant all all today, not sure if it was the stress of yesterday or just a bad day. I am hoping to go for a run with Paul in the new car tonight, so I can get some fresh air and peace and quiet.

New car

I can't believe after only two days of taking Quinine my tinitus is much worse, so bad that even the radio didn't drown it out. I have had a lot of pain in my calf muscles too, they feel hard and its like their burning.

We collected our new car this lunchtime, and I was relieved the seats didn't hurt my back. We ruled out so many based on uncomfortable seats, it was a relief to actually find one. Our old car is too low, which means its very hard to get in and out. Almost impossible if my back muscles are bad, so at least this new car is the right level. You would not realise they are so many things to think about until you have these issues.

Interesting article

I was reading an interesting article about different types of pain, apparently FMS sufferers suffer from seven different types of pain. It was good to know that I'm not alone in having to cope with these strange pains, Which change constantly, in different parts of your body, or all over when really bad. I could relate to the voodoo doll pain, as you never know where or when it will happen, but you know it will hurt.

Here is a link to the article http://chronicfatigue.about.com/od/whatisfibromyalgia/a/fibromyalgiapain.htm 

My feet & calf muscles were much better this morning, so I did some ironing while I could. But after lunch I had too much pain in my hips and feet so had to sit down. I did manage to help Tom cook tea, but let him use the cooker after my last near disaster!

Doctors again

Finally got my blood test results today, my doctor told me my vitamin D level was 40. Last years result was 50, so slightly lower this time and below the recommended level of 75. So I've got to keep taking my Adcal tablets, and she told me to spend 15 mins outside at least five times a week. The good news was all my other results were normal, although my cholesterol was borderline.

She also gave me some more medication to help with my muscle cramps. Last time it increased my tinnitius, but she gave me a lower dose this time. So it might take a few weeks to notice an improvement, without making the tinnitus worse.

She also told me I can't take Tramadol, as she has increased the Amitriptyline as it could cause fits etc. So I've a new tablet called Nefopam to try, when the pain gets bad enough.

Thankfully it has cooled down today, so managed to get a bit of ironing done. I also went to the library with my son and daughter, we weren't there long but my muscles were sore when we got back. My feet are also painful, they feel like the are full of broken bones. Fingers crossed they feel better tomorrow, not easy to get around like this.

Hot hot hot

Another really hot and humid day, so I decided rather than stop at home, to go to Asda with Tom. I haven't felt like going since Easter, but it was nice looking round at the new things. We did stop to chat to my sister in law, which didn't help my back muscles or my hips. That's one of the hard things, when the condition interfers with daily life. I didn't like say I couldn't stand and chat, but paid the price afterwards.

It was too hot to stay indoors, so we sat in the shade which was cooler if not ideal. I hope we get some rain tonight to cool things down a bit,

Hot weather

The walk yesterday resulted in a lot of hard painful muscles in my calves mainly. I have had quite a bit of cramp today too, but the heat has been the worst thing to cope with.

I sat outside this afternoon so got plenty of vitamin D, but its been so hot its given me a splitting headache. I like sunshine but not when its humid so you don't get any relief indoors or in the shade. Not sure how I'll sleep unless it cools down soon, especially with our dog barking at every sound when the windows are open.

My cold has been a lot better finally, but still got a tickly cough but so far it hasn't kept me awake.

A lovely walk

I've had a lovely day for a change, despite still feeling rough with my cold. I have slept better the last few nights, which helps but still feel rather drained.

After lunch we went for a lovely walk, we drove to the village church as its too far for me to walk from here. Next to the church is a cricket field and there was a match, which is a very British summer scene. Our dog loves going a walk in the fields, but he got tired quicker than me. I enjoyed the sunshine, peace and quiet, spending time with my husband Paul, so it was worth feeling tired when we got home.

Weekend

I didn't feel too bad first thing, so decided not to take some paracetamol. I soon regretted it though, sore throat, earache and now my cough is getting worse.

Luckily the pain in elbow has been better today, which after six months of constant pain due to tendonitis, it was a relief.

I am really hoping this weekend might be dry and sunny, as I haven't been out of the house this week. Well this month I've only been out three times so far, and two of those were to my doctors surgery! I don't plan to go far, just a gentle walk with my husband and our dog. Hopefully it will help my cold, get some exercise and might get a bit of vitamin D if its sunny.

Photos

I was looking at some old photos recently, which made me realise how quick time goes by. This time last year our daughter Laura had gone to work in America at a summer camp near New York. It was my Mum's 70th birthday while she was away, and everyone had a wonderful day.



Me on far right of photo

 I was really surprised how well I looked, as it was after a few bad weeks.

Relief

I am getting fed up of this cold now, but it made me appreciate how lucky I am not to have to feel like this normally. People who suffer breathing problems must feel like this all the time, which is a frightening thought. The only thing that gives me any relief is breathing methol, or albas oil.

I have had to be careful how I moved today, my back muscles are still tender. I did try to do a few little jobs round the house, mainly tidying but my muscles ached. I finished reading my library book about Fibromyalgia and was surprised to learn swimming isn't recommended.

Resting

I decided as I didn't feel well to stop in bed this morning and just rest, I didn't sleep for long, then read for a bit. I got up at lunchtime as I wanted to be able to sleep tonight, but didn't do much. I kept going outside for a bit of fresh air, but it isn't very warm today.

Just hope I can get some sleep tonight, although taking regular pain medication has helped today.

20th June 2011

This awful cold made me feel so bad I couldn't even go on my laptop, so must be ill! I couldn't think at all, so went to bed early, had to get up in the night twice to make a hot drink as my throat was so sore. I did find a methol inhalation helped with my breathing, but it doesn't last long.

On a positive side it hasn't flared my Fibromyallgia like some viruses do, but my back is still tender.

Cold

I woke up unable to move, I tried to reach for my drink of water but it sent a spasm of pain though my back. I had to wake my husband who fetched me some tramadol, as well as a hot mug of tea to soothe my sore throat. I couldn't breathe either so he got me some albas oil, as I can't take most decongestants due to my medication.

The tramadol helped take the edge of my back pain, so did get back to sleep for a few hours. As it was Father's day I got up, but didn't feel up to going to the Dam where my Dad's ashes were scattered. But I know he would understand, and I don't have to go somewhere to think of him.

Our daughter cooked us a really tasty Sunday lunch, and despite feeling rough I enjoyed it. I resisted having some more of Tom's birthday cake, but did have some more fruit.

Just hoping for a better week.........

Back trouble

I was really hoping to feel a lot better when I got up this morning, as we were invited to a wedding. I could feel my back muscles were rather delicate, even moving slightly and after washing my hair my back went completely. I was in a lot of pain, the muscles were so tense and I could hardly move, so had some tramadol, and a heat pad stuck to the worse area. It's still painful but I've been walking around slowly so I didn't get too stiff.

I have had trouble getting upstairs to the bathroom, but had to take it one step at a time. I decided to soak my feet this afternoon, as I couldn't do much else. So Paul got me a bowl of hot water with some lavendar foot soak and it was really relaxing. He then dried them, and plastered them in E45 cream, as my skin is so dry these days. They feel so nice now, don't know how I'd manage though if I didn't have such a caring husband.

I did really well with my healthy eating today, cereals for breakfast, strawberry yoghurt with sliced banana for lunch, as I wasn't very hungry and a ham salad for tea. I have also had more decaf tea, rougly half and half with my normal tea, as it warns to wean yourself off slowly.

Just hope the pain in my back eases before bed, as its not easy laying down in this much pain.

Blood test

I went for a blood test this lunchtime, and remembered to mention last time how painful it had been. I realised the vein they used was where the tender point of my elbow is, so had a painful elbow joint for four weeks! Hopefully it will be easier this time, it already feels better than it did last time.

I really feel as though I'm getting Tom's cold, my eyes are really sore and I've got a really tickliy cough. Last time my cough was really annoying as it kept me awake, which just makes me even more tired.

I decided today I'm going to cut down on how much tea I drink, so will start drinking decaf teabags. I always end up with a dreadful headache when we go out, so it should help.

It's twenty years today since our wonderful son Tom was born, at 8.20pm after a very short labour. We have been really lucky  that we have had such healthy, clever and well behaved children, that have grown into two wonderful adults that we are so proud of.

No better

Well so much for me saying last night I should have no problem getting to sleep as I was so tired! I couldn't get comfortable and was wide awake, I even considered getting up again. But decided not to disturb Paul, and our dog Izzy always follows me if I come back down.

I've had another day of wide spread pain, so not felt like getting anything done. I did sit outside briefly, but then it threatened to rain, so gave up and came indoors. Every time I moved it just flared the pain even worse, especially in my neck.

I am beginning to worry if I'll be well enough to go to a wedding this Saturday. I think it will depend on how I feel when I get up that morning, as its hard to guess during a flare.

Tired

Had a better day, I didn't need any more tramadol which was good, although did have some ibruprofen for a headache. I had more pain in my back this afternoon, especially down my spine, then after tea it felt like my ribs were been crushed.

The weather wasn't as nice today, it felt humid indoors but dull outside. I didn't sleep too well last night, so felt really tired all day so should sleep tonight.

Sunny day

I could tell when I got up this morning I would need to take some Tramadol, as the pain was every where and too much to cope with just my normal tablets. Luckily it did ease the pain, and I also went outside in the sunshine as it was a beautiful day.

We all decided to go for a walk, so Laura drove us up to our village church and went a walk up through the fields. It was flat and a pleasant walk, except I wish I had remembered to take a bottle of water. It tired me out but I felt good for getting some exercise as well as plenty of vitamin D.

I had a lot of pain in my hip at teatime, so struggled to prepare tea. As my daughter was out and my son had hurt his hand, my husband helped me cook it! He is a great help, despite him not doing any cooking himself, but is good at following instructions luckily.

Sore throat

I woke up with a sore throat this morning, so ended up with it causing a flare of my condition. I have had wide spread pain all over today, but worse in my hips, legs and elbow. I did increase my pain medication, but it hasn't helped that much. So another few days, weeks or even months of this to look forward to! My worse flare lasted four months, so fingers crossed it isn't that bad.

It was sunny briefly this morning so I had a walk around the garden, but it was too windy to sit outside. I would have liked to go for a little a walk with my daughter Laura and our dog Izzy, but the pain in my hips was too much. Hopefully I will feel better tomorrow and then will try to go a walk as its supposed to be nice, if my son or daughter will go with me. I can't take him on my own, as he pulls too much for me to hold his lead.

I had problems with my speech today, kept using the wrong words which is annoying. It isn't too bad if I'm talking to my family who are used to it, but wonder what strangers would think!

You have to laugh!

I had no energy this morning to get up, all I did was go and make a drink when I first woke up and it took all my energy. I got back to bed then that was it, so no hope of me going to the car boot with Paul & Laura. They were only going for a quick look round, so it would have made a change but had to admit defeat and stop in bed.

I got up when they got home about ten, but didn't feel much better even then. It's so frustrating to feel as tired as when you went to bed, but its beyond feeling tired really more like you're exhaused.

We did have a laugh earlier, I'd asked Paul if he would heat my wheat cushion for my neck. Then I totally forgot about it until I was sat thinking my neck is really painful, then realised it was still in the microwave! Which my daughter found very funny!

My abscess on my gum is still healing slowly, but when you have Fibromyalgia you don't heal as quick as normal. I finished my antibiotics in the week, but it does look as though its improving eventually.

It has rained all day, but it doesn't bother me as it keeps it quiet outside. Yesterday someone down our road was cleaning his car, with his radio on full blast. I can't understand why people have to be so inconsiderate, as it was too loud for me to have a window open.

I am supposed to sit out in the sun to get some natural Vitamin D but been unable to tolerate noise makes it difficult. We haven't had much sun recently though, well not warm enough to sit out in, even this coming week looks like more rain is forecast.

Dangerous situation

I was helping serve tea last night, only the small pan of peas and some how forgot to turn the ring off on the hob. We didn't notice until the tin Paul had put down on it, began to burn! I never remember doing anything these days, so will have to really concentrate on unplugging the iron etc.

I couldn't wake up this morning again, could have sleep forever and it took a while for me to get going when I did get up. I did try to empty the dishwasher, but my back muscles went into spasm again. It's so frustrating, but I sat down to finish empting it, which is usually how I fill and empty the washing machine.

Paul went to the library and the other book I'd requested had arrived. I wasn't totally surprised to find I was the first person to get it out. It is writien by a Fibromylagia sufferer, so hopefully it will be interesting. The other one I'm currently reading is written by a doctor, but its very medical at times!

I did feel as though my head was a bit clearer, so did some research on my tree this afternoon. I tried to peel some mushrooms for tea, but ended up with cramp in my hands. I have also had a lot of pain in my neck and shoulder, so Paul rubbed some pain relieveing gel in, as well as taking more pain medication. Didn't really get much relief though, probably lasted an hour at most. It's a difficult area to use the heat pads, they work better on the lower back as its flatter. So I use my wheat bag as that wraps around my shoulders, but not much use if you go out.

So tired

I had a bad night, due to a lot of pain in my shoulder, elbow and hand so it wasn't easy getting comfortable. I also had a cramp in my calves, so probably should have got up but was too tired. Probably the increase in Amitriptyline, or just did too much yesterday, (only did a bit of ironing)  which is why I feel half asleep even now mid afternoon.

I hoped things would improve this morning when I got up, but my back went while getting dressed. So I've struggled to do anything today, just feel like I'm fighting to keep awake.

More known in America

 I requested some library books about Fibromyalgia from my local library, not surprisingly the one that arrived is American. The condition is much more known over there, we even saw adverts while we were over in Washington DC last year, for drugs available for sufferers.

My best friend lives in Florida and she can't believe how little is known of the condition over here. Or how little is done to help sufferers, its amazing to think that in the UK we only have one doctor Professor Davis who actually specialises in Fibromyalgia Syndrome. (With clinics in London & Bristol)

Even finding a GP that understand the condition isn't easy, which is why it takes some (well most) people years to finally get a diagnosis. But you don't have to give up hope, one day some one will listen to you.

A Walk

I went for a short walk with my son Tom and our dog Izzy this afternoon, which was the first for months. It was admittedly a slow walk compared to Tom's pace! Luckily the pain was mainly in my shoulder and neck today, so it didn't stop me walking, but my hip hurt by the time we got home.

I need to try to get more exercise, so might try the Wii Fit, if I can remember how to turn it on!

Doctors visit

I had a successful visit to see my doctor, although my BP was higher than normal. We discussed how I'm coping, and I explained some times it's hard to accept I need so much help. So she suggested I increase my Amitriptyline, so will probably find it even harder to wake up for a few days. I have an appointment for a blood test, and then have to back for the results in three weeks. 

I also told her I was considering applying for DLA, as someone had mentioned they thought I might qualify. She said she would support me, but warned there is no guarantee it would be successful. So will fill in the forms and see what happens, as I have to accept I do need help every day.

Doctors Appointment

Much to my relief my shoulder was much easier this morning, even though it wasn't easy getting comfortable last night. Pity the other one was painful though, as well as the back of my neck one of my common painful areas.

I made an appointment to see my GP tomorrow afternoon, so now have to write a list so don't forget why I'm going! I usually take someone in with me, but will have to go in alone, hence the list.  My son Tom has to go and fetch my daughter Laura home from work, as it was the only time she had available. (Its so hard getting through at half eight in a morning, then most of the time been told they have no appointments left!) So he will drop me off and come back for me later, just hope I'm not still waiting to go in!

I don't go to see my doctor as often as you might think, as there isn't much she can do that she hasn't already tried. We do discuss my medication, change the doses, and arrange blood tests etc if needed. I was prescribed Quinnine for muscle cramps last time, but they really increased my tinnitus so had to stop them. So wonder if she has any alternatives for me to try????

Needing help

Today I have had a really painful shoulder, caused my me shutting the window during the night as I felt cold. I woke up with a numb hand, so realised it hadn't gone off during the night and I couldn't move my arm without causing pain. So used some pain relieving gel to help directly on my shoulder, plus some heat, but struggled not to use it during the day. I forgot once when I reached to turn on the tap, but didn't do it again! So I had to let my daughter come home from work and cook our tea, instead of me who should have done it, but couldn't again!

I was still tired from yesterday, so didn't achieve much today, except I now have smooth silky legs courtesy of my wonderful husband! I can't do them myself without causing more pain, even him doing them causes intense itching, with my skin sensitivity. (I forgot to take one of my tablets before we started, so paid for it when he used the shaving gel! Luckily using oil to calm the skin down afterwards, as well as taking a tablet did help.) He helps me with a lot of things that involves stretching, like washing my hair, or doing a pedicure on my toe nails etc.

It's not easy asking for help to do things that most people take for granted, but sometimes you don't have a choice. I feel sorry for sufferers who live alone, or have unsupportive partners as having a chronic pain condition makes you suffer enough. No one would chose to feel this way, but lack of understanding of this condition, even by some of the medical profession, can sometimes make you feel very alone.

Temperatures

I decided to sort my wardrobe out today with help from my husband Paul, so we packed away the winter clothes and unpacked my summer clothes. Its getting too warm now for jeans and sweat shirts, although I do feel cold more than I ever did before. I never had any socks, but now I have a drawer full, from trainer socks to thick house socks, as my feet are usually freezing. But in summer I really feel the heat, so prefer vest tops and shorts to keep cool and comfortable. They say when you have Fibromylagia, your thermostat is broken, so I probably shouldn't be surprised.

Recently the skin on my hands has felt as though its burning all the time, hope it goes away soon as its an annoying feeling. The electric shock pains have flared up again, they hurt even though they don't last long, so not good in a different way. Imagine someone sticking a pin in you, it makes you jump and hurts as well, and you never know where or when it will happen next!

I felt beyond  tired once we had finished, even though it took us all day, with breaks. I sat down for a rest and couldn't get up, as my muscles were so sore it felt like they had closed down. I felt about seventy five, not forty five when I slowly hobbled into the kitchen to help cook tea. Not that I was any help, as I could hardly move and when I did it hurt too much.

I really hope it will cool down a bit tonight, so I can sleep, pity we don't have A/C over here. I always dreaded going some where hot, but A/C makes so much difference and much easier to cope with the heat outdoors.

Lucky

23 years ago today I gave birth to a beautiful healthy baby girl, our first baby and it only seems like yesterday I was in that delivery room. Funny I can remember so much about that day, when I can't remember what I did last week!

I feel really feel lucky to have had two brilliant children, who have given us so much happiness, that no amount of money can buy. I might have health problems, but am so grateful to have had two healthy children, as no parent wants to see their child ill or in pain.

I do worry that I am becoming a burden on them which I don't want to be, but they know when I'm struggling to do something and take over.

Mixed emotions

It's been a mixed day of emotions, but not really sure why, part of me was happy that I felt well enough to do some ironing. But also felt a bit sad as I feel I don't do enough, as when I had done the ironing  and hung some washing out I'd no energy left.

I also felt a bit rough, but I am now taking the antibiotics, but not had many yet so some of how I'm feeling could be due to that. Or even because I didn't sleep very well last night, I was just too warm, so might need to get a fan out of the loft, if it doesn't cool down a bit.

I am a bit worried about my elbow, as its been rather painful the last few days, and it's only a few months since my tendonitis went away, after about six very painful months. I haven't done anything to aggravate it that I remember, but didn't last time either.

Dentist

I hate going to the dentist, but today I had to give in, as I have an abscess on my gum, so needed some antibitics. I am hoping they work, as it's uncertain what will happen next if not, as the tooth might have to be removed. Luckily its not too painful, probably due to all the pain medication I take, but it is sore.

I felt really stressed while waiting in the waiting room, and could feel my heart racing when it was my turn. I ached all over, but at least I got there and now the antibiotics can do their job hopefully.

I also went to buy some clothes on the way home, as my daughter had some discount vouchers.  It was a nice distraction for an hour, even for me who doesn't normally enjoy shopping. But by early evening I was completely drained, my back muscles were so sore, I just collapsed on the settee. I feel like someone unplugged my batteries, so don't know how I'll climb up the stairs to bed, oh I wish we lived in a bungalow, or even better a Florida villa!

A Dilemma

I received a wedding invitation recently, which should be good news but as usual it brought with it the same dilemma. Not what will I wear, or what gift should I buy, no it was how do I reply. As I don't know whether I will feel well enough to go, so is it best just to say no, that way you don't let them down at the last minute. But then is that fair to the family who are also invited, as on the day you could actually feel well enough to go and you've all ready declined.

I hate this feeling and hate having Fibromyalgia even more, because of how it takes over your life. You have to live one day at a time, so how can you plan something next week, next month or even next year................

Helpful things

I was really tired this morning, and despite sleeping late still didn't feel like I'd had enough sleep. The amitriptyline is suppose to help me sleep, but as I've been taking it for ages perhaps I need to increase the dose. It is very good for nerve pain, as I once tried to stop taking them and could really tell a difference.

I think I felt so drained as we'd been out the last two days, which even for short outings is still a lot. I have noticed my eyes have been more blurred recently, so it makes reading difficult especially small print.

I had to sit down to empty the washer earlier and also get a pizza out of the oven, as its much easier on my back doing it that way. I normally sit on a chair to put the plates away too, except the large ones which I usually ask someone else to do as they are too heavy. If no one else is home I have to put them away one at a time.

I did get a perching stool on loan from the occupational therapy department of our local hospital, but its really too big for our kitchen.  The OT also gave me a thumb splint to wear when ironing, as it gives me cramp in my hand. I do have full hand splints for my carpal tunnel, but you can't do anything wearing those.

Somethings are really useful, I couldn't be without my drinks bottle at night, as it has a no spill lid. Ideal for when I can't sit up, or if I knock it over when my hands are numb.

Better day

I was so pleased to feel a lot better this morning,  I even went to a sale with my husband and daughter where I got a new handbag. The pain was still in my leg though, so was glad we didn't stop long.

I felt well enough to go to my sisters house this afternoon, as it was my brother-in-laws birthday. I had a nice time, but can tell my memory isn't what it was at times, especially when playing trivial pursuit.

Most of my pain has been in my spine and legs, so more pain gel to help ease it as well as the tablets. My hands also feel sore as though the skin is burning, so will use my cooling gels packs to soothe them before bed. (That's if I remembered to put it back in the fridge! LOL)

One worrying sign today was I felt like I've a cold coming on, and if its the type of virus that causes a flare up it won't be good news!

Struggling

I really hoped to feel well enough to go out this morning, but certainly didn't feel that way when I woke up. But to avoid disappointing anyone, or giving in I got up, as I did want to see our Tom's new department at work, now he has been promoted to supervisor. I had felt very numb and stiff when I woke up, but walking around and having some breakfast helped.

When I got there I really wished I had stayed home, its no pleasure looking round when your legs & back muscles hurt. The pain is more bearable when moving, but I can't stand for long so don't like busy shops. with long lines at the checkout.  Luckily Paul or Laura stood and waited , while I found a seat outside, but it makes you feel a bit useless.

I was hungry at lunchtime, so enjoyed our burger, even though they aren't something I eat very often. When we got home I did some ironing, as our Laura needed some uniforms as she is working tomorrow and Monday.

I had to sit down though once I done a few items, but usually I prefer to iron in a morning when my legs don't hurt as much.

Tomorrow we have been invited to my sisters, to play board games and have some birthday cake. I really hope we can go and have some fun for a while, at least it doesn't involve walking or standing! LOL

Friday 27th May

When I woke up this morning I had a funny thought and it make me remember Forest Gump's saying Life is like a box of Chocolates! I had though it would be good if you could chose which pain or symptom you were going to have that day. So if you were going to be walking, the pain could be in your arm instead, or if you needed to concentrate, then it could be in your body and leave your head clear. Or even better, put all the pain in a box and not open it!

Today both ankles decided to flare up, as if getting around with one wasn't hard enough. I am hoping to go shopping for an hour in the morning, so hopefully it will have moved some where else when I get up. I know some sufferers use a wheelchair rather than stay home, but not sure how I feel about the idea as I would be worried people would think there is nothing wrong with me. That's the biggest problem with invisible illnesses, you look fine most of the time, so people don't know how much pain you are in.

The back of my neck as been painful too, so can't turn my head much and as usual when its there it gave me a splitting headache. Paul put some of the pain relieveing gel on my neck, which easied it for a little while. It's still hard to believe how many parts of the body are affected, but we do have a lot of muscles, tendons and ligaments.

Decisions

Suffering from Fibromyalgia means you have good days, when the pain is bearable and bad days when the pain takes over. But most days are in the middle, not that you know which sort of day you will have. Sometimes it's not the pain that makes it hard to cope, its worrying you will forget something important. I can't make a decision like before either, so if I didn't have a family to rely on I don't know how I'd manage.

One important thing I struggle with is medication, have I taken some, or not! Remembering to order a new prescription is something I have to carefully monitor, so I don't run out of tablets.

It gets very frustrating as I had a really good memory, before my diagnosis I even went to see my GP to tell her how worried I was. She offered me a memory test that they use for alzheimer patients, but told me if was so easy I wouldn't have a problem passing it! So I decided not to take the test, then when I read about the cognitive problems sufferers have, it was a big relief.

Now I have to find ways to deal with the problems...........

A trip out

I had a trip to the local archives planned this morning, (the first of the year unbelievably), but woke up feeling like my head was still asleep. (Which isn't ideal for doing research)  I also felt as though my body had been pummelled all over and something heavy was sat on my chest, so it took all my energy to get out of bed.

I was so tempted to cancel, but decided to go as Tom said he would fetch me home if I didn't feel any better. Tom dropped me off and I did have some success, but didn't enjoy it as much as I usually do. I couldn't even remember how to spell the word record, when I signed in! I get a lot of pain in my neck and back, (one of the worst affect areas), so after sitting looking at the records it was a relief to come home.

I had a splitting headache when I got home, probably due to a combination of eye strain reading the old fashioned writing, and lack of fluids! ( I do miss my cup of tea when I'm out! LOL)

I had been a bit worried how my ankle would be today, but luckily it was fine. I wasn't hungry at lunchtime, but treated everyone to something from Cooplands.. I had a custard slice for my lunch, which although it isn't very healthy, it doesn't hurt occasionally to have a treat.

I still feel as though my head isn't working properly, I can't concentrate on anything and get the words muddled up when talking. Even writing this has taken longer than normal, as I had to reread it over and over, so it made sense!

Hoping tomorrow is a better day............

Vitamin D

Update about my ankle, as the evening went on it got steadily worse, until I could hardly move it. It felt as though the joint had locked up, was extremely stiff and the numbness was creeping up my leg, so I wonder if I had trapped a nerve. It is times like this when I wish we lived in a bungalow as getting up and down the stairs was a challenge to say the least!

I did eventually get to sleep, and it was much easier this morning until I put some weight on it. Thankfully it eased to a dull ache, so I could get some washing done, but I avoided walking up and downstairs more than necessary.

It has been really windy the last few days, so it's not felt warm enough to sit outside in the sun and get some Vitamin D. Although I take a daily supplement, (as the injection my doctor tried at first didn't help enough), I am suppose to get as much sun as possible. Which isn't easy as I'm not that keen on sunbathing, so I usually just sit out for a bit with a nice cup of tea.

Which reminds me I really need to go to see my GP to arrange another blood test, to check the levels, but getting an appointment isn't easy these days.

Distraction for the pain

Today the pain has won, mainly because it was in my ankle, making it painful to walk. I did manage to empty the dishwasher after breakfast but then without warning it felt as though my ankle locked up. The pain comes and goes, but all the time it feels as though its about to give way. Just glad I wasn't out, or it wouldn't have been fun getting back to the car!

Later the pain has moved to my ribs as well, so it feels like something is giving me a bear hug and slowly crushing them.

As a distraction to the pain I have scanned some photos, to add to a Family Tree that I'm researching. Because I am at home so much it gives me something to do, also helps me make new friends. I love to help other researchers which makes me feel useful, and on good days I love visiting the archives.

Limitations

I was relieved to wake up this morning without the awful headache, but the pain was pretty wide spread over my body, including twitching mucles. Don't mind those so much, at least they don't hurt unlike the burning skin sensation in my thighs. The electric shock pains are the worst, you never know where or when it will happen except that they hurt and I seem to be having a lot at the moment.

My arms have been so painful it felt like they were broken most of the afternoon, probably because I did some ironing this morning! It really prevents you doing even simple jobs, or at least without some help, like cooking a meal. As I struggle to peel vegetables, or lift heavy pans etc, so its lucky both Laura and Tom can cook. Also having memory problems I have to really concentrate on what I'm doing when cooking. As one day I put some sausages under the grill and went outside to look at something and totally forgot about them! (Luckily Tom came down in time to rescue them)

It affects other things too like hobbies, as I used to love doing really complicated jigsaws, especially photomosaic like Mickey below. But I noticed a few months ago that I would sit all evening without putting a piece together. It's as though your brain is full of cotton wool, plus blurred vision doesn't help with those lol, so I decided rather than give up doing any, to just do simpler pictures like the cute Tatty Ted.

UK Fibromyalgia Website Click Here

This website provides lots more information about the condition and has a very friendly forum where you can get help and support from other sufferers.

Bad Headache

Last night I could feel a headache coming on, but unlike a normal headache which I get a lot it was mainly around my left eye. I took some paracetamols and tramadol, as I find they work best taken together, as well as some ibruprofen. (It eased eventually to a bad headache, but wasn't able to use the laptop, and it felt much better once I went to bed in the dark. I don't get them this bad very often and it woke me up about half six this morning, so had to go and make a drink and get some more tablets.

Eventually after many more tablets it eased to bearable, and now just feels like there's a needle stuck in my eye.

I can't say I've done much today, I did manage to do one load of washing as my husband Paul changed our quilt cover which is too big and heavy for me. I did hang it out, but its not easy when your arms feel like lead weights, struggling with a wet king size cover!

Laura our daughter helped me cook tea, we had a new piece of chicken with a cheese and ham crust which I really enjoyed. Most days I eat food but don't enjoy it, but for once it was a pleasant change and will be perfect with some home grown vegetables like their marrow and courgettes.

I can't eat very rich food any more, especially fresh cream, or foods in a creamy sauce. But despite not eating anything like what I used to, I still don't lose much weight. Not been active and getting much exercise is my main problem, but even small walks aren't easy when you are in pain.

My face is numb at one side at the moment, which was one of my very first symptoms years ago. I was referred to see a neurologist with the numbness and tingling who arranged for me to have an MRI. But when the results ruled out MS, the doctor said she couldn't explain my symptoms so discharged me!
I did have a nerve conduction study done, which showed I had carpal tunnel in my wrists. But no one explained why my feet were extremely sensitive, or one side of my body was sensitive, but the other was numb.
It gets rather depressing when test after test comes back and the doctors don't have any answers.

Early start

I woke up knowing we had a possible buyer coming to view our caravan, so was feeling rather stressed. They were expected at 9am, which was a bit early for me, but I allowed plenty of time to wake up slowly and then got ready without rushing. I was too nervous for breakfast, but felt much better once they arrived and loved the caravan.

I had mixed feelings when they drove off, part of me was sad to see it go, but the other half knew I just don't feel well enough to use it enough. You need to be able to plan a trip away, you need to book a site etc, but that's not easy when you never know how you will feel when you wake up.

We had an amazing trip last year to New York, which for weeks before I was really worried how I would cope and not spoilt it for my family. The flight is about eight hours, which if you are in pain sat in the cramped space, makes it much worse. So whenever possible I went for a walk to the back of the plane, just to stretch my legs which helped. We also chose an airline with a decent seat pitch to give us plenty of leg room. (Well not exactly first class, but better than some previous planes we've flown on!)
 I knew I wouldn't be able to walk for miles every day, but with lots of planning, using the bus and trains I coped really well. The most important thing was having plenty of rests, so stopping for a drink or snack often through the day, helped pace ourselves. The weather also helped, as it was warm ( I've always used heat to help with the pain) but not humid, then the air conditioning in the hotel room stopped it getting too warm to sleep. I also worried the hard mattresses would hurt my back muscles, but using a spare quilt folded up to lay on really worked. ( I even left the maid a note to leave the bed alone!)

We saw so much more than I ever expected to, so didn't feel guilty for spoiling everyones holiday. I did have quite a bit of pain, mainly in my elbow, but one day it was in my foot which was frustrating, as I couldn't walk so we caught the bus back to our hotel where I rested it for a few hours. It also gave me time to catch up with our daughter Laura who had been working at summer camp out there. While my husband Paul and son Tom went to a aircraft museum to see Concorde, which they both enjoyed.

I was quite surprised you can't buy ibruprofen gel in America, but did find a substitute which helped ease my foot and elbow pain for a bit.

So after such a brilliant time it helped me believe that with lots of planning and a bit of luck you can have a good trip, despite having this awful condition. I know next time I might not be as lucky, as I've had a few bad flare ups which prevent me from leaving the house for weeks,  but I realise getting stressed doesn't help, and probably makes things worse.

Bad Day

As soon as I woke up this morning I knew it was going to be a painful day, the pain was all over my body.  I didn't have the energy to get up, so my husband got his own pack lunch and brought me a drink and my tablets. My muscles are all aching, especially in my back and neck.

I eventually got up and felt a bit better once I'd moved about for a bit, but it didn't last. I managed to put some washing in, only because it needed to go in rather than I felt well enough to do it. I did some more jobs like empty the dish washer, but my fingers are feeling numb so its hard not to drop things.

Lunchtime I didn't have any appetite, which is normal these days but had a ham sandwich. Instead of what I normally have, a slice of toast as I need to eat more healthily to lose weight.

I had to rest this afternoon, I didn't want to but my muscles were very painful, especially my lower back and hips. Luckily it helped enough so I could cook a simple tea and tidy the kitchen as we are expecting visitors tomorrow. My hands are still sore, they feel swollen so even typing is painful.

I am wondering if I feel this bad because its the beginning of a flare, which is usually caused by a virus.

Well off to bed now as I'm shattered, lets hope the next post is more positive!

Medication

I take a lot of medication, as there isn't one magic tablet for all my symptoms, but it doesn't help much.

For my Fibromyalgia I'm currently taking Paracetamol, Gabapentin, Amitriptyline daily and when necessary Ibuprofen and Tramadol for the pain. I also take Chlorphenamine for my skin sensitivity, and Adcal for Vitamin D deficiency.

Plus Atenolol for high blood pressure, and have various creams for my skin, and psoriasis which luckily is just on my scalp.

Symptoms

Where do you start????? well the main symptom is pain, which appears all over the body. The pain can be felt as a burning, stabbing, aching, even electric shocks pain all over the body. It moves around the body, sometimes the pain lasts minutes, hours or even days. Your skin can feel as though its badly sun burnt, and your muscles can feel so tense its hard to move.

Tiredness is another difficult symptom, waking up feeling as tired as when you went to sleep, is normal with this condition. The lesson that you eventually have to learn is to pace yourself, better to do a little every day, than push yourself one day and need several days to recover. This is easy to say, but not easy to accept, or do when you can see things need doing.

Numbness, tingling or pins and needles are common, making it hard to do things, especially when your fingers and hands are affected.

As it affects the muscles in your body, it has affected my eyes, often they go out of focus making it hard to read or watch TV. I stopped driving two years ago because I no longer felt safe, even though it comes and goes its not worth the risk.

I also have tinnitis, which is worse at night when its quiet, that can make it hard to get to sleep, on top of the pain.

Cramp is another symptom that causes more pain, especially when it keeps you awake.

Memory problems, this is both inconvenient and dangerous at times, especially when cooking. Sometimes you can't remember something so basic as a name, or how to spell a simple word.

Some other symptoms include been sensitive to odours, bright lights and especially noise, morning stiffness, muscle twitching, feeling that my fingers are swollen, sensitive skin, and dizziness.

Background

I was finally diagnosed with Fibromyalgia in February 2009, after suffering for many years. I had seen my doctors over the years, had various scans, blood tests etc but they never had any answers, or provided me with any relief from the symptoms. They ruled out MS, Lupus etc, and when I finally got a diagnosis, it was a relief in many ways.

Once I read the information leaflet explaining the symptoms, which I appreciate are many (and do vary from patient to patient) it made me wonder why it took so long for me to get a diagnosis. The relief of knowing what was wrong didn't last long, mainly due to the fact you can't just take a tablet and feel better, or that eventually you will get better and the pain will stop.

Living with a chronic pain condition isn't easy, so not surprising some days are better than others. Especially when most people have never heard of Fibromyalgia, and because you look normal, people don't understand how much pain you are in. It's not their fault, how can they know how you feel, which is why more awareness of the condition is needed. Not been able to plan activities, outings etc because you never know how you'll feel is very frustrating, causing more stress and guilt by letting your loved ones down.

So I have decided to write this blog to help me cope, and I hope it will also help other people who are also suffering, even just to let them know they aren't alone, or to help the families of sufferers understand a bit more about the condition.  Although I can't promise it will always make sense, but as people with Fibromyagia know it affects the brain and at times you have Fibro fog moments. I am not a medical expert, everyone suffers differently, so this is how the condition affects me and my life.