Wednesday, 18 May 2011

Background

I was finally diagnosed with Fibromyalgia in February 2009, after suffering for many years. I had seen my doctors over the years, had various scans, blood tests etc but they never had any answers, or provided me with any relief from the symptoms. They ruled out MS, Lupus etc, and when I finally got a diagnosis, it was a relief in many ways.

Once I read the information leaflet explaining the symptoms, which I appreciate are many (and do vary from patient to patient) it made me wonder why it took so long for me to get a diagnosis. The relief of knowing what was wrong didn't last long, mainly due to the fact you can't just take a tablet and feel better, or that eventually you will get better and the pain will stop.

Living with a chronic pain condition isn't easy, so not surprising some days are better than others. Especially when most people have never heard of Fibromyalgia, and because you look normal, people don't understand how much pain you are in. It's not their fault, how can they know how you feel, which is why more awareness of the condition is needed. Not been able to plan activities, outings etc because you never know how you'll feel is very frustrating, causing more stress and guilt by letting your loved ones down.

So I have decided to write this blog to help me cope, and I hope it will also help other people who are also suffering, even just to let them know they aren't alone, or to help the families of sufferers understand a bit more about the condition.  Although I can't promise it will always make sense, but as people with Fibromyagia know it affects the brain and at times you have Fibro fog moments. I am not a medical expert, everyone suffers differently, so this is how the condition affects me and my life.

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