I felt well enough to go out this morning with my daughter to buy uni supplies for Laura and I got some folders for my new business. I was pleased that now I've stopped drinking the caffiene tea, I didn't get the dreadful headache like before.
I sat outside when we got home, as it was sunny for a change, but not overly warm. Laura baked us a fruit crumble, with fruit from their allotment for lunch. Later I did some of my jigsaw, but my back muscle were so painful and it didn't ease till this evening.
Just hoping I can sleep tonight, as it seems to be alternative nights at the moment.
Sunday, 24 July 2011
Thursday, 21 July 2011
Back at last
More frustrating days without the internet, but fingers crossed the problem is now sorted!
I haven't been able to sleep the last few nights, had a lot of pain in my hip and leg which made it difficult to lay on that side. Last night my skin felt like it was on fire, which made it difficult to get to sleep too.
I felt better today, even did some ironing and hung some washing out. I had had more muscle pain once I'd finished, but it needed doing. Then my son took me for a lovely run in our new car, which was a pleasant change.
I haven't been able to sleep the last few nights, had a lot of pain in my hip and leg which made it difficult to lay on that side. Last night my skin felt like it was on fire, which made it difficult to get to sleep too.
I felt better today, even did some ironing and hung some washing out. I had had more muscle pain once I'd finished, but it needed doing. Then my son took me for a lovely run in our new car, which was a pleasant change.
Sunday, 17 July 2011
Internet problems
I have had no internet for the last two days, and have missed it terribly, as its my distraction for coping with this condition. I didn't felt very well yesterday, woke up with overall pain so had to rest. Luckily today I felt so much better, which was a relief as a flare usually lasts a lot longer.
We went to my sisters this afternoon, to celebrate my Mum & nephews birthdays which fall on the same day. I was happy as I did well answering some trivial pursuit questions, which recently has been difficult with my poor memory.
My legs have been really painful, especially the tendons behind my knees. But have increased my Amitriptyline again, so now take 50mg a night. Hopefully it will help with the shooting pains, which I still keep getting.
We went to my sisters this afternoon, to celebrate my Mum & nephews birthdays which fall on the same day. I was happy as I did well answering some trivial pursuit questions, which recently has been difficult with my poor memory.
My legs have been really painful, especially the tendons behind my knees. But have increased my Amitriptyline again, so now take 50mg a night. Hopefully it will help with the shooting pains, which I still keep getting.
Thursday, 14 July 2011
Cooler temperatures
I slept better last night, and have had a good day now the weather is better. I did hear we will have more rain the second half of July, but better that than high humidity.
I did some research today, luckily my brain was working reasonably well which helps. I do have to make notes to help remember things, and at times my eye sight is blurred which is frustrating. But won't let it stop me doing something I enjoy, and I find it a good distraction for the pain.
I did have some strong painful spasms in my back muscles, and more shooting pains in my feet. I've not been out this week so far, so hopefully will feel well enough to go to my sisters this Sunday.
I did some research today, luckily my brain was working reasonably well which helps. I do have to make notes to help remember things, and at times my eye sight is blurred which is frustrating. But won't let it stop me doing something I enjoy, and I find it a good distraction for the pain.
I did have some strong painful spasms in my back muscles, and more shooting pains in my feet. I've not been out this week so far, so hopefully will feel well enough to go to my sisters this Sunday.
Wednesday, 13 July 2011
Decision time
Couldn't get to sleep last night at all, despite feeling really tired, so slept a bit later this morning. I over did things though, as I tried doing some light housework, which completely drained me of energy. My ankle continues to be a nuisance, it just locks up without warning and is very painful.
I have had a few more quite strong electric shock pains too, which had eased recently since I increased my Amitriptyline.
I have been doing some thinking recently as I have a big decison to make and not sure yet what to do. I enjoy doing Genealogical research, so I'm considering doing it as a job, only part time working from home. I don't want my condition to prevent me doing something I enjoy, but also know that stress makes things worse. But think it might be better to try it, and if it is too much stop, than always wonder how I might have coped. So on Sunday I am meeting up with my business partner to discuss our options and come to a decision on what we will do.
I have had a few more quite strong electric shock pains too, which had eased recently since I increased my Amitriptyline.
I have been doing some thinking recently as I have a big decison to make and not sure yet what to do. I enjoy doing Genealogical research, so I'm considering doing it as a job, only part time working from home. I don't want my condition to prevent me doing something I enjoy, but also know that stress makes things worse. But think it might be better to try it, and if it is too much stop, than always wonder how I might have coped. So on Sunday I am meeting up with my business partner to discuss our options and come to a decision on what we will do.
Tuesday, 12 July 2011
Improvement
I didn't feel too bad this morning despite having to get up earlier than normal. But the pain in my ankle is back, and the pain in my left hip has been worse today.
I have had a better appetite recently, but trying to eat healthly, as last week when everyone was off we had some treats.
I have had more pins and needles in my hands which is aggravated by the carpal tunnel. But the splints the hospital gave me are very uncomfortable to wear. You can't use your hands either, so I have to put up with it I suppose, as I don't want surgery.
But I think the flare that I had last week has improved, as the pain levels have subsided back to a normal level.
I have had a better appetite recently, but trying to eat healthly, as last week when everyone was off we had some treats.
I have had more pins and needles in my hands which is aggravated by the carpal tunnel. But the splints the hospital gave me are very uncomfortable to wear. You can't use your hands either, so I have to put up with it I suppose, as I don't want surgery.
But I think the flare that I had last week has improved, as the pain levels have subsided back to a normal level.
Monday, 11 July 2011
De-caf success
I was really tired this morning, so took a while to get up and feel awake. I decided to stop having a normal cup of tea first thing as it tastes too strong now. So now have a smaller one mid morning which seems to work, and from having twelve normal teabags to just one, with no problems I'm happy. It's a benefit the de-caf teabags taste better as I don't like strong tea.
I have had some pain as usual but nothing too hard to cope with, except my ankle was a bit sore if I walked up or downstairs. It was warm in the sun, but not humid today so didn't end up with an awful headache.
My joints are stiff this evening and all my muscles feel sore which is normal but you do wish it would be nice to be pain free for a day.
Tomorrow we have to take our dog to his hydrotherapy session, so its an early start which isn't ideal for me. But I'll take my book and stop in the car, as the place has a very steep garden which isn't ideal for me.
I have had some pain as usual but nothing too hard to cope with, except my ankle was a bit sore if I walked up or downstairs. It was warm in the sun, but not humid today so didn't end up with an awful headache.
My joints are stiff this evening and all my muscles feel sore which is normal but you do wish it would be nice to be pain free for a day.
Tomorrow we have to take our dog to his hydrotherapy session, so its an early start which isn't ideal for me. But I'll take my book and stop in the car, as the place has a very steep garden which isn't ideal for me.
Sunday, 10 July 2011
Helping
I decided to help this morning by moving a few bits of wood to the skip, so now have some sore scratches on my hands even though I wore gloves.
The warm muggy weather today hasn't helped my headache, wish we could get a bit of rain to clear the air and cool things down a bit.
My doctor recently suggested I tried doing some gentle gardening to help with stress. But even a bit of weeding increased my pain too much to be relaxing! My back muscles feel like they are on fire, and the burning sensation is back in my thighs today.
The warm muggy weather today hasn't helped my headache, wish we could get a bit of rain to clear the air and cool things down a bit.
My doctor recently suggested I tried doing some gentle gardening to help with stress. But even a bit of weeding increased my pain too much to be relaxing! My back muscles feel like they are on fire, and the burning sensation is back in my thighs today.
Saturday, 9 July 2011
Pain free feet!
I couldn't get to sleep last night at all, my mind just wouldn't switch off, so I even thought about getting up again. I've had a much better day, no pain in my feet for the first time this week, which was a big relief. I did have more pain in my back muscles, especially when standing but felt better in general.
The new drive is finished, despite me been no help and looks wonderful after a week of hard work. They other area round the flower beds is still to finish, but it was great to see the new car driving on for the first time.
The new drive is finished, despite me been no help and looks wonderful after a week of hard work. They other area round the flower beds is still to finish, but it was great to see the new car driving on for the first time.
Friday, 8 July 2011
Raining
I've had a better day with more managable pain levels, although I have had a bad headache. (Probably due to the weather) The work on the drive is progressing really well, but the weather has been awful with frequent heavy showers. So I've not been sat out at all today, to be honest its not felt that warm either.
We watched the last space shuttle launch on TV this afternoon, and was relieved it went up safely. We had briefly considered going over to Florida to watch it live, as the last one we saw was amazing. But the flight prices were riddiculous high, and feeling like I have this week I doubt I'd have enjoyed it very much.
I have had a full week of just one drink of tea with caffiene in first thing in a morning and no severe headaches thank goodness. So next week I might try alternate days and see how it goes. so time will tell.
We watched the last space shuttle launch on TV this afternoon, and was relieved it went up safely. We had briefly considered going over to Florida to watch it live, as the last one we saw was amazing. But the flight prices were riddiculous high, and feeling like I have this week I doubt I'd have enjoyed it very much.
I have had a full week of just one drink of tea with caffiene in first thing in a morning and no severe headaches thank goodness. So next week I might try alternate days and see how it goes. so time will tell.
Thursday, 7 July 2011
Flare continues
Wednesday 6th July
Didn't feel up to writing my blog last night, I was too tired to think straight. In the afternoon I had a dreadful headache, due to the hamering outside. So ended up sitting outside until it rained, then sat in the garage. I did do a bit of ironing in the morning, but by lunchtime my feet felt so painful I couldn't walk. I also had pain in my ankle and hip again, so put more pain gel on to see if it would help. I think it did a bit, but mainly resting with it elevated helped the most.
Thursday 7th July
I slept better as it was a bit cooler, but didn't want to get up this morning as I had pain everywhere. But eventually got up and managed to do my hair and then do a bit of tidying. My feet were a lot less painful, except my ankle which locked up so couldn't put any weight on it again! I've noticed a lot of numbness in my left side again, funny how it just comes and goes.
Just hope this flare doesn't last for much longer, not been out for so long I've forgot when or where it was!
Didn't feel up to writing my blog last night, I was too tired to think straight. In the afternoon I had a dreadful headache, due to the hamering outside. So ended up sitting outside until it rained, then sat in the garage. I did do a bit of ironing in the morning, but by lunchtime my feet felt so painful I couldn't walk. I also had pain in my ankle and hip again, so put more pain gel on to see if it would help. I think it did a bit, but mainly resting with it elevated helped the most.
Thursday 7th July
I slept better as it was a bit cooler, but didn't want to get up this morning as I had pain everywhere. But eventually got up and managed to do my hair and then do a bit of tidying. My feet were a lot less painful, except my ankle which locked up so couldn't put any weight on it again! I've noticed a lot of numbness in my left side again, funny how it just comes and goes.
Just hope this flare doesn't last for much longer, not been out for so long I've forgot when or where it was!
Tuesday, 5 July 2011
Hard to walk
I couldn't get to sleep last night due to the pain and been too hot, so still felt tired this morning. My ankle was a bit easier until I started walking around on it, so sat out for a while getting some vitamin D to rest it. By lunchtime my painful feet were back, so now sat with them up, as it feels like I'm walking on broken glass if I put any weight on them.
Work is progressing on the drive, we have had so many deliveries its hard to keep track. Luckily the nice man form Virgin media came earlier than expected to repair the cable, so we now have a working phone and the internet is restored. Been house bound so much, it is my link to the outside world, and I'm lost without it.
Work is progressing on the drive, we have had so many deliveries its hard to keep track. Luckily the nice man form Virgin media came earlier than expected to repair the cable, so we now have a working phone and the internet is restored. Been house bound so much, it is my link to the outside world, and I'm lost without it.
Painful feet
Monday 4th July
Work began on our new drive and front garden today, I found it very frustrating not to be able to help. Well except make drinks etc, but despite hardly doing anything I was in so much pain by teatime. My feet felt like all the bones were crushed, one ankle felt badly sprained and my arm muscles felt like I'd been digging soil!
We went to be just before ten, as they were all shattered due to the amount of work they'd done, I was just shattered due to having this awful condition.
I couldn't post this till today, due to the cutting through the phone/internet cable that wasn't buried very deep!
Work began on our new drive and front garden today, I found it very frustrating not to be able to help. Well except make drinks etc, but despite hardly doing anything I was in so much pain by teatime. My feet felt like all the bones were crushed, one ankle felt badly sprained and my arm muscles felt like I'd been digging soil!
We went to be just before ten, as they were all shattered due to the amount of work they'd done, I was just shattered due to having this awful condition.
I couldn't post this till today, due to the cutting through the phone/internet cable that wasn't buried very deep!
Sunday, 3 July 2011
Stiff joints
I found it easier to sleep last night now the buzzing is back to a normal level, but it was a bit on the warm side. We need the windows open, but our dog is annoying as he barks at the slightest noise!
I have really sore feet and tense muscles, but haven't been stood much today. My daughter just had to help me lift up my leg, as my hip was too stiff to lift it on the pouffe.
I am really tired tonight, and have to be up early tomorrow so hope I get a good night's sleep.
I have really sore feet and tense muscles, but haven't been stood much today. My daughter just had to help me lift up my leg, as my hip was too stiff to lift it on the pouffe.
I am really tired tonight, and have to be up early tomorrow so hope I get a good night's sleep.
Saturday, 2 July 2011
Lovely drive
We did go for a lovely drive yesterday evening, we called to show our new car to my sister and family. My 9 year old nephew had two medals to show me, that he'd won in a ski-ing competition for school.
We drove round some country lanes and through some villages, where some of Paul's ancestors were from. I normally drag him round the church graveyards, but just enjoyed the drive last night.
Today I did some ironing, but my back muscles and hips made me stop after a while. So I decided to go for a look round the warehouse with Paul & Laura for a bit. I enjoyed looking round, but was relieved the queues at the checkout weren't long as I can't stand for long.
My back and hips were aching when we got back, but at least I didn't have another headache. The buzzing in my ears has been more bearable too, so won't be able to visit any countries that I could get malaria!
We drove round some country lanes and through some villages, where some of Paul's ancestors were from. I normally drag him round the church graveyards, but just enjoyed the drive last night.
Today I did some ironing, but my back muscles and hips made me stop after a while. So I decided to go for a look round the warehouse with Paul & Laura for a bit. I enjoyed looking round, but was relieved the queues at the checkout weren't long as I can't stand for long.
My back and hips were aching when we got back, but at least I didn't have another headache. The buzzing in my ears has been more bearable too, so won't be able to visit any countries that I could get malaria!
Friday, 1 July 2011
Quinine
Went to bed last night and the buzzing in my ears was horrendous, completely unbearable so made the decision to stop the Quinine. It took ages to get to sleep, with pain my muscles as well. I really can't believe how bad a reaction I have to only two tablets!
This morning I had a dreadful headache, it felt like my head was been crushed, I also had a lot of pain in the back of my neck. It was the first morning for two weeks I hadn't had a normal mug of tea, so not sure it it was a coinsidence or not. So I've decided to carry on just having the one normal mug of tea for a while longer, then slowly reduce it. Surprisingly I actually prefer the de-caf ones as its not as strong, so its not hard to switch.
I haven't felt brilliant all all today, not sure if it was the stress of yesterday or just a bad day. I am hoping to go for a run with Paul in the new car tonight, so I can get some fresh air and peace and quiet.
This morning I had a dreadful headache, it felt like my head was been crushed, I also had a lot of pain in the back of my neck. It was the first morning for two weeks I hadn't had a normal mug of tea, so not sure it it was a coinsidence or not. So I've decided to carry on just having the one normal mug of tea for a while longer, then slowly reduce it. Surprisingly I actually prefer the de-caf ones as its not as strong, so its not hard to switch.
I haven't felt brilliant all all today, not sure if it was the stress of yesterday or just a bad day. I am hoping to go for a run with Paul in the new car tonight, so I can get some fresh air and peace and quiet.
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